And the cow jumped over the moon

Jackson has a very special pillow.
We don’t go on any trip without it.
He doesn’t sit in his chair without it.
Well– truth be told it’s not really the PILLOW it’s a pillow CASE

Wait.

Let me go back about 7 years

Clay ( Jackson’s Daddy) is a MAJOR WWI history buff. Specifically the airplanes. He’s the type of guy that when you’re watching a movie says “Oh, that’s a Blah flippity blah blah but that couldn’t have flown THEN  because they hadn’t started production until…….”
Yeah. He’s THAT guy. So he had a t shirt that had an airplane on it. A WWII P40 to be exact. He LOVED this shirt, but it was wearing thin, and Clay was loathe to part with it because the design was so cool. No problem for a crafty dame like myself, I turned it into a simple t shirt pillow.

We weren’t prepared for Jackson to glom on to this pillow. But he did. It became HIS airplane pillow.

He sits in his chair and pats it.  He looks at the plane on it.  He asks for it.

It goes through a cycle of use, wash, repair, use, wash repair,repair repair.

All too soon the t shirt fabric is almost too thin to BE a pillow.  And the batting inside it matted and lumpy and misshapen from repeated washings.

Time to get creative again

I cut away everything BUT the airplane and salvage what I can.
I stabilize it ( oh how I love you SF101)  and affix it to a custom made pillow case that matches the colors and present it to Jack.

Thankfully it  passed the test. It’s been well over two years and its still going strong.

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But……… I have tried breaking the obsession.  I’ve tried introducing other pillows and pillow cases.  I want a back up.  I want something ELSE to be able to take the place……Just in case…

I’ve tried baseballs

I’ve tried Spongebob

Etc etc ad nauseum

I would place the pillow near him and I would get a resounding

Noooooo–ooooo
Loud and clear

But then. I found it

THE fabric that would TOTALLY captivate him!!

I smugly patted myself on the back, ordered the fabric and

TODAY made the pillow cases.

The fabrics? oh just…….Prints of Jacks all time favorite book Goodnight Moon ! Cows jumping over the moon! A red balloon in the great green room !! Pictures from the book.
Perfect images !!
RIGHT?! How much more perfect could it possibly be?!

You have to know–  there are at least 5 copies of Goodnight, moon! in this house.
2 ALWAYS within his reach.

I put one of the pillow cases on the spare pillow. I walk over to the chair.

He sees it and says, “Goodnight moon. La Luna”

I’m ecstatic
I put the pillow on his lap

He says, “No”

His respite worker says, “Jack , see it’s on your pillow – Goodnight moon on your pillow!”

He pushes it away and begins to make a noise that sounds like a vintage Plymouth trying to start on a cold morning.  His voice rises in pitch as he emphatically states . “Nooooo-oooooo!”  pronounced with several syllables.

I take the pillow away.

I am totally bummed  and I chalk it up to his obsession with the airplane pillow .
(Autism 1 Tina 0) I take pictures of the pillowcases and post on social media because I still think they’re pretty cool. And beautiful.

And that’s what we geek sewers do ☺️

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Now it’s night and   we are putting Jack to bed when I remember –” I gotta go retrieve Jacks pillows for bed — Aw heck. I’m not gonna put the old pillowcases back on. I’ll just leave the Goodnight Moon ones on. He never notices pillowcases on the bed.”

Wrong.

Wrong.

Wrong.

Jack  is getting into bed and all we hear is:

“Daddy. The cow jumping over the moon. I see the circles. The moon. The moon. La Luna. The moon Daddy? I see the circles. The cow jumping over the moon.”

His hands would flap. He would look at his pillow case and smile. He was animated. He was communicating. He was engaged and engaging. He kept looking at us.  He kept looking at his pillowcase.  It  went on and on long after the lights went out.

I made him happy.

I made Jackson very, very happy when I had absolutely no expectation to do so and wasn’t trying to.

I wanted Jackson to want that pillow case for his chair and enjoy it it THERE .   He didn’t.

And in my shortsightedness, that’s where I let it end. But that’s not where JACK let it end.

I wonder how often we allow our expectations to limit our enjoyment of something.

I know for Jack , whose head is resting upon pictures of the cow jumping over the moon, who went to sleep saying “Tina the moon the moon the moon Tina “– He taught me -once again – to live in the moment.  Be open to all the joy that is out there.

Out of the closet…….

It has been over a year and a half since I have begun blogging about my adventures with Jackson.
Through it all I have received nothing but positive feedback and praise for this little boy whose life touches many.
My readers here and over at Jack’s Facebook page have come to love this little boy.
Jackson’s smile gives joy to people.  His love of fuzzballs, slinkys, and all things spinning is endearing.
His struggles with seizures and TSC is inspiring.
Jackson is, as always, living in the moment.

So now it is time to come out of the closet.
Jackson is part of a movement that many support, some fear, and others are on the fence about.

Jackson is a medical marijuana patient in the state of California.
He is so with the blessings/knowledge of his local pediatrician and his TSC clinic.
While some may have images of a an 11 year old “sparking up” , let me assure it is nothing like that.
Jackson takes a dropperfull  of a non alcohol based tincture in the morning and a product called Rick Simpson oil (also known as “Phoenix tears”) in the evening.
Neither of these products have a psychotropic effect.
Let me repeat that:
They do NOT have a psychotropic effect.  That is to say: Jackson is NOT getting “stoned”.
There is no “head change”.

These are carefully crafted MEDICINES that have proved radical in Jackson’s treatment for his seizures, his TSC, and his joint pain.

The process is above board and on the up and up.
The dispensary where we choose to purchase Jack’s medicine is safe, friendly and……INCREDIBLY KNOWLEDGABLE about their products.

We live in Humboldt County which is widely regarded as the stoner capital/pot growing mecca of the United States.   However, we are not alone in the medical marijuana movement.

Check out what is happening in Colorado- with the Realm of Caring – and their specially crafted strain known as “Charlotte’s Web” that is showing amazing progress in the treatment of seizures.

Georgia is next.
Fingers crossed.
Check out what is happening there through Connor and his mommy

It’s happening, people.
It’s slowly happening, but it IS happening, and lives are being saved and being made BETTER with the use of medical marijuana.
I’ve seen it.
I’ve felt it.
And I stand solidly behind those that are fighting for the legalization of medical use of the cannabis plant.

Still with me?
Does it change the way you see Captain Jacktastic?
Are you appalled?  Surprised?

We are still who we are.
And we continue to fight the good fight.